Caregiver Resources

Organizations

Common Ground Society

Me Fine Foundation

The National CMV Foundation

Better2Gether (Richmond, VA area)

Podcasts and Films

The Rare Life Podcast

Once Upon a Gene Podcast

Unseen Caregiver Documentary

Childlife on Call Podcast

The Disorder Channel

Books

Show up and Bring Coffee: How to Support Your Friends with Disabled Children.

Care for the Caregiver / Self-Care

Labeled and Loved

A Mother's Rest

Amanda Giffith Atkins on Instagram

Project WellCast Study at Purdue University

Trauma-Informed Yoga for Medical Parents & Caregivers

Advocacy

Centering Disability on Instagram

The *Ultimate* Disability Resource Guide & Librarey

Retail Providers

Tiny Tubie Shop - Support for Medically Complex & Tube Fed Families

Risen Devices - Wearable medical bracelets that take you directly to health info with a QR code

Consulting

Blue Bee Collective (Physical Therapy & More)

Lauren Lowery

Surveys and Clinical Trials for Medically Complex Families

Rare Patient Voice - paid surveys & interviews

& more!

Global Genes

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Let the Compass be your Guide